As many of you have noticed, I stopped my daily blog entries before I could even get halfway though the A To Z Challenge. It is a lovely idea and a great group of people; I just honestly had no idea when I started this project in April that I’d also end up tackling a much tougher project: cutting back on my beta-blockers in an attempt to feel a little bit healthier.
I’m pleased to report that nearly 20 days after deciding to finally do something about the beta-blockers, I have successfully cut my dose in half. This is a much faster transition than doctor’s recommend, but one of the “special” things about me is that when I set my mind to do something, I tend to want to reach goals as fast as possible. I had a terrible two weeks of withdrawal and rebound symptoms, and know these symptoms may keep on going for a good while yet, after reading the experiences of others. But I’m proud of myself for making it this far.
One of the strange and most distressing symptoms is pain and swelling in my fingers, which make it difficult to write longer blog entries like this one. I’ve never had anything like this before, but do spend a large percentage of my day typing on electronics. I am hoping it is a temporary problem or side effect of drug withdrawals, and not an entirely new health issue or worrisome symptom of my “mystery illness”. In any case, all of this has caused me to simplify my life, check out of anything causing stress or deadlines, and having to give up on the A-To-Z challenge. I’d love if all of you who wrote supportive messages would keep coming back to visit, and my thanks for that support. I’m also very sorry for having to abandon something I was very excited over doing…that is not like me at all. I do tend to overload my plate with things I want to do and get very stressed out about that, and it just wasn’t something I could handle while going through withdrawal symptoms. I promise I will be back next year, though.
I do not know if cutting back on the beta-blockers has helped me, but it certainly hasn’t hurt. I’ve started to wake up earlier, started working even a minimal number of hours again, dropped a few pounds, and some days, I catch myself feeling way happier than I have in a long time.
One of the things that goes along with dealing with a chronic illness is that people think you’re depressed, especially when it changes your lifestyle from being the life of the party to being a bit of a recluse. Earlier in the week, The Guy I Am Currently Dating and I got into a fight because he found out I’d been spending time playing a game online every day, meeting new online friends, and didn’t mention it for a year or so. I understand why he was angry about it, that I kept something important to me a secret. However, when you’re sick, sometimes it’s important to have a space of your own, where people don’t treat you like someone who is sick…even the rare people you strike up friendships with via Skype or e-mail. It is important to have a space to just be yourself, the you that you were before something came along and took away pieces of your spirit and your life. It is important to meet other people, even strangers, who may be suffering in their own lives, but rarely talk about it because it is a relief to escape from the world and the people in it that consistently want to help, but just remind you that you’re not normal, and hurt you because you can’t give the thing they want: the old, energetic, healthy you back.
Sometimes, remembering what it’s like to be healthy for a few hours is more helpful to a person suffering with chronic illness that the most supportive and loving friend. You don’t love your friends any less, but when they are living out in your old life, in a world you can’t participate in, it kind of hurts and is hard not to be depressing or feel depressed after a while.
I do not generally feel depressed, even if I can’t go out and play. A friend of mine has told me that everything that has happened to me has made me a more substantial person. I am happy and appreciative of the small things; the TV shows I love, reading and writing, a lovely chat with a friend, a visit on the weekends, a surprise for no reason. I am no longer spending hours posting pictures of myself, and getting involved in arguments on Facebook, or spending every Sunday in bed with a hangover. I am not even killing myself with anxiety over sick family members, financial troubles, or even what has made me so ill for so long, and if there’s going to be a diagnosis or treatment. My primary focus in life is me and doing the things that make me happy, for maybe the first time in my life. Pleasing others is no longer something that is there to define me. It may seem selfish, and it may seem weird, but I am not depressed. Some days, I am even optimistic that a day will come when I have my life back, and still have that greater appreciation for the small things. Some days, I am even happy; I smile and I laugh. I am not always at peace with my situation, but I am at peace with myself more than I’ve ever been. There is a reason that when people are recovering from anything, whether it’s addiction, mental illness, or a physical ailment, “putting yourself first” becomes less of a foreign concept. I still feel guilty over it sometimes, but when “feeling the best you can today” becomes your most important thing, so many other things are secondary.
Healing, even a little bit at a time, is a personal journey…but I really do appreciate everyone who cares, everyone who leaves comments or chats with me on the internet or sends me Skype messages or posts things on Facebook I like. I know that The Guy I Am Currently Dating may be bored with all our “quiet time”, but the 100% truth is that I look forward to Friday nights with Boston Market and Amazing Race every bit as much as I did going to the coolest new restaurant, and drinking until 4 AM at the club. Yes, I still miss those things and someday, adventures may be part of my life. But for now, things that used to bore me and be met with a “Why can’t we DO something?” are now things to which I look forward.
Perhaps it’s fair to say all these struggles have helped me grow up, just a little, without my even noticing.
Thank you to everyone who is sharing my journey with me. It may not be the road I’d have chosen for my early 30’s, but I am not alone and I am not depressed. In fact, I’ve started feeling happier than I have in a long time, looking forward to things that are months away, without the caveat “If I’m still around”.
I would have liked to have the energy to finish my A To Z project, but instead, I spent April focused on healing, baby steps at a time, so that maybe I’ll be in a better place for next year’s A To Z April.
And who knows? Perhaps this less than desired chapter of my life will make a wonderful book someday.