You may have noticed I haven’t been around a whole lot lately, and I’m not sure why, other than I’ve been struggling with a sense of depression and isolation I don’t wish to inflict on my readers day in and day out, just as I don’t wish to be that person who’s always bringing my friends down in real life. The result is often a feeling that it’s too much work to talk to anyone, and I’d prefer my world quiet and filled with solitude. At the same time, I feel kind of a large weight on my chest that’s either anxiety, or a warning sign that my heart is about to go on permanent strike.
I’m still not recovering. I’m still gaining weight steadily, despite eating and drinking less than ever. Research into the subject shows this is an unpleasant side effect of my medication, along with hair loss, and short of discontinuing my use of beta blockers and restricting my calorie intake to about 800 calories per day to maintain my weight, there’s little I can do. I still suffer from headaches and intolerance to bright lights and sometimes, merely leaving my house. I sometimes wonder, “What if the doctor is wrong, like so many before him?” I wonder if I am dying, and how best to put my affairs in order, to make it easier on everyone if I don’t wake up tomorrow.
According to the literature I’ve read, my feelings are pretty normal, although they seem pretty screwed up to me. It mentions that being diagnosed with a chronic illness sends people through the five stages of grief typically reserved for coping with the loss of a loved one or receiving news of your own impending death. Instead of mourning for another person or preparing for the end of your own life, you’re mourning the loss of your former self, of things you believe you can no longer do, a person you can no longer be…at least for awhile. This makes a lot of sense to me, because it *is* how I feel. I just feel compelled to go through my process in isolation more days than I’d typically feel comfortable with just my own company. Too often, I don’t feel strong enough to face the world…and when I try and fail, the failure hits me hard. I wonder if I will be alone and unloved for much of the next portion of my life, after a life spent constantly on the go, in the spotlight, seeking the attention and approval of others.
I did make it out this weekend, despite some struggles with anxiety and feeling physically ill, and to a concert of all things. We saw Ani DiFranco at Variety Playhouse, and although Ani didn’t perform many of my personal favourites, I enjoyed a lot of the stuff from her latest album. Her opening act was a rather unknown act from Brooklyn called Pearl And The Beard. I liked their music a great deal, although the acoustics made it difficult for me to enjoy them as much as I’d have liked to. Their lead singer is a fabulous, eccentric lady, barely taller than I am, but with a belt voice that encompasses almost her entire range. It’s unusual to come across a white female who can belt without a break in her voice (no, it’s not racism, it’s just one of those weird biological facts learned throughout my years of vocal training.), but this band’s singer, Jocelyn, belts almost up to a high C. As an operatic soprano whose belt voice won’t even think about trying that, I’m both jealous and impressed….enough that I wanted to purchase their CD. Alas, it was sold out. We said a few words of congratulations to Jocelyn after the show and received hugs, so I hope to see and hear good things from them.
As for Ani, I think her voice only gets better with time. Like Tori Amos, she has an unusual, quirky voice that may fool you into thinking she lacks true vocal skill, but you’d be dead wrong (on both accounts.) Ani doesn’t have an interesting range or the ability to play with light and darkness in her voice the way Tori does, but she performs in a variety of styles and shows off a really strong voice when she chooses to. Other times, she chooses to take a Bob Dylan-esque, musical-without-singing, narrative approach. Both are equally compelling. As a person, I think she’s extraordinarily likable, slightly to the left of me in her personal and political views, and not afraid to tackle the controversial. This was my third Ani show, and I’ll keep seeing her, as long as she keeps coming to town.
This was my personal favourite from her latest album:
I made it through most of the concert without any unwanted feelings or panic attacks, until the bright blue gels went on and everything started flashing. I sat with my black wrap covering my head like a burka and using the hat The Guy I Am Currently Dating always wears as a shield. But,all in all, I’m glad I went to see the show.
In other news, I was invited to perform at an event at a local theatre, a monthly showcase called Write Club. It seems to consist mostly of actors, writers, and other theatrically-minded individuals. You’re given a challenge partner, and two sets of contrasting themes (i.e, Happy Vs. Sad.) It’s not improv; you have about two weeks to craft a 7-minute monologue, story, poem, performance art piece, essay, whatever you want to do. The person receiving the most applause “wins”, which pretty much means you’re entitled to choose a charity that one-third of the proceeds will go to benefit (there are three winners per night.) You also have the benefit of hearing some pretty interesting and talented people do their thing.
I submitted an application at the end of December, when on my “I’m going to break out of my comfort zone and focus on doing things I like, even if I’m sick” kick. I had rather forgotten about it, but was kind of impressed they wanted me to appear so soon after I’d submitted my application. It made me feel liked for a brief nano-second.
Since the show occurs the day after Valentine’s Day, the three themes are relationship related. Mine is “Stay Vs. Go”, and, appropriately enough, I have “Go”. I immediately wrote a piece that was funny and charming, in my own opinion, but since The Guy I Am Currently Dating has encouraged me to explore writing different pieces instead, I’m not sure he agrees with my assessment. The hardest part, of course, is fitting the story you’d like to tell into 7 minutes. On first reading, mine was 11. I had to edit my piece 5 times to get it down under 7 minutes, and there’s not much room for leeway still. I’m totally not used to editing, so of course, now I think the whole thing probably sucks. I’ll throw it under my bed somewhere with the rest of the random stuff that was a good creative idea at one time or another, but really wasn’t.
I also read Paulo Coelho’s Aleph, which I would have finished in one sitting, did I not have the terrible habit of only reading and writing late at night. Paulo Coelho is my favourite author, probably the best thing I got out of my time with someone I’ll likely never cross paths with again, but who made an impact upon my life in terms of love and spirituality and finding the essence of oneself. Not coincidentally, these are Coelho’s favourite themes. I enjoy some of his books more than others; the more abstract, philosophical stories he shares appeal to me on a much different level than those that read like a “My Trip To The Mayan Ruins’ docu-drama. Aleph is one of his strongest, along with “Eleven Minutes”, ““Veronika Decides To Die”, “The Alchemist”, and “The Witch Of Portobello”.. I have a habit, borne out of the friendship previously referenced, of sharing these books with those who touch my life in some extraordinary way…and are also the type to understand and appreciate the complexity of what’s being shared. This is certainly one I’ll be passing along.
On a similar note, I started reading a book called Yours Ever: People And Their Letters, a sad reminder of how bleak and emotionless our world will look 50 or 100 years from now, when impersonal communication has taken the place of the outpouring of ideas and feelings. I don’t think one person will be saving the tweets and e-mails of those who may potentially change the course of our world, which is a little sad. I think I am simply, at heart, part of a different era, one where communication and expression and vulnerability and human connection are valued….and not in blocks of 140 characters at a time. I think I may always continue to write little handwritten notes and cards, although it’s impractical and unfashionable.
The author of the book, Thomas Mallon, agrees:
“In this electronic age, a letter is personal and permanent. It says you took the time and trouble to communicate. The impact of a letter is unique, whether you’re complaining about a disappointing purchase or declaring your love. The point is, write. A letter or a card is truly a unique gift—a piece of yourself.”
That being said, I’ve crafted some pretty memorable letters—both of the disappointed-and-pissed-off-with-your-product sort and the hopelessly-and-secretly-in-love-with-you sort, and sent them via e-mail. And I didn’t give myself an ulcer agonising for weeks until receiving a response. There are advantages to instantaneous communication.
I didn’t watch but the the last 3 minutes of the Super Bowl; I don’t follow football, commercials disinterest me, and it was largely too much work to turn on my TV to see Madonna. However, happy that New York came out victorious, since it’s only like the world’s most awesome place and stuff.