Today, I woke up remembering that when I was 20, I ended up in New Orleans, waiting to meet a guy I’d never met but knew very well at the airport. I’m pretty sure I’d never been so nervous about meeting a person in my life. I remember that, always self-conscious about my almost translucently pale skin, I’d attempted to use sunless tanner. What looked like orange Ben Nye pancake makeup was all over everything and it took a very abrasive exfoliating wash and a loofah to remove most of it. Yet, for all my trying, I ended up showing up at the airport wearing a cute white and blue butterfly dress and had orange streaks on my legs. It was, of course, laughable later. Looking back, it was the unfortunate side effect of caring too much about how others might judge you, and it was ridiculous. It was also an illustration in what happens when you take risks. They don’t all work out, but sometimes, it doesn’t matter much. That particular person was so nervous about meeting me, he scarcely noticed my failed experiment in becoming a Jersey Shore cast member.

I’m not sure why I woke up thinking of that day, except maybe that last night, I wore a wig that I bought during that trip. Last night was full of heartbreak and tears, and discussion about ending a 5-year relationship that has meant the world to me, all prompted by silly string. And, there I was, thinking about a younger version of myself who literally dyed herself orange.

I’ve been relatively quiet over here lately, and my poor little blog has been feeling neglected. You see, although I managed to spend the majority of December stuck inside my apartment—something that has led even my most introverted friends to say they’d have gone stir-crazy— I also felt too unwell to write. It’s odd, the feeling that even the thought of picking up a computer (or a pen and journal) might make one feel completely exhausted. I didn’t do much work, to the chagrin of both my bank account and sense of accomplishment. I certainly didn’t do much on the creative front. I even left my Christmas cards until the very last minute, because they are like all of my correspondence, not simply a name scrawled on a card. I write long and often heartfelt messages to the people in my life on occasions that merit cards, and even some that do not.

This year, whether due to illness or some sense of heaviness in my heart, I simply have not wanted to write. For me, writing is, above all, a type of catharsis. It fills the same space in my life that music or performance or any other type of self-expression does for me. For whatever reason, I have not wanted to handle the overwhelming idea of self-expression. That, of course, means that I have been largely disinterested in confronting and examining my own feelings.

About what, I do not know. On the whole, 2013 has been kind of a roller-coaster of a year. For a majority of the year, I seemed much healthier and energetic than what I was used to. In my second year of dealing with what the doctors call a “chronic illness”, there were times I forgot I was ill. I was able to host social events, hang out at clubs and go drinking and dancing with my friends, and reclaim a bit of that adventurous spirit I used to have. I was able to spend over two weeks traveling the East Coast on a bus during the summer months, dealing with challenges such as a crazy heat wave and going back to the beach where my illness first began. I was able to push through the anxiety of dealing with the reality of what my family was going through, and I cried a lot because although my family hasn’t offered me anything resembling home or affection in a long time, the realisation that the shadows and comforts of your childhood are gone and you’re really, truly alone, it’s a hard one.

Through it all, I was also able to visit old friends I see rarely, but all of whom mean a tremendous amount to me. Although they all seemed to be going through something in their own lives, they were also all there for me in their own way, and remembering I have an extensive and varied support system out there– even in the form of old friends whose lives have taken a different path from mine, and others who imagine that might not always be the case— it made me a stronger person. Coming back to Atlanta also made me appreciate the love and support I have here, because family is not always determined by blood ties. I hadn’t been back two weeks before getting news that my mother had a stroke, either her fourth or fifth. This one was rather debilitating, and led the doctors to the conclusion that she should live out the rest of her life in a nursing home. It is difficult to speak to her, as both her speech and hearing are affected, but I try to remember to send letters, cards, packages, and photos, little things that cheer her up. I know that if I were facing illness and isolation for the rest of my life, it is those little things that would be a bright spot.

I managed to handle DragonCon, marching in the parade in incredible heat, going to the SIEGE conference for the weekend, helping The Guy I Am Currently Dating with his annual fundraiser, and throwing a huge party for him where I sang in public in Atlanta for the first time in a few years. I managed to help my brother try to get help dealing with all the responsibility on his shoulders, and to be someone who is there for him. I managed to make it through fun Halloween celebrations, and even attending a concert with loud music and flashing lights. All signs pointed to the idea that I’d be better. A check-up with the doctor yielded good results; my blood pressure was so low, it might soon be time for me to come off medication, and possibly have energy, vitality, and the ability to lose weight again.

Then, in early November, I seemed to have a relapse. Driving in the car would cause an out-of-control sensation near my kidneys that would move to my heart, my lungs, and eventually my brain. I had panic attacks and blood sugar crashes that my normal medications could not control. Thanksgiving, although a lovely holiday tradition of visiting my former roommate and her family (including two beautiful little girls, two dogs, a cat, and a husband) for turkey and Black Friday shopping, left me physically exhausted in a way that is not normal for someone my age. Nevertheless, I kept on going, singing karaoke, playing trivia, and wandering around the Botanical Gardens for four hours in the freezing cold to look at Christmas tree lights.

After the first week of December, I contracted a really bad cold/flu, which turned into an infection that kept me in bed for almost three weeks. As of today, I am still coughing up a lung, as my body’s immune system seems to have no defence against this particular germ. The illness affected my ear, which meant return of panic attacks and migraines, and the prolonged inability to go back out in the world meant a return of the social anxiety symptoms. I was afraid that every time I went out, I’d have a panic attack–which often happened–not as a result of people, but riding in the car. For a month and a half, the feeling of depression returned, which happens every time I get better and then I get worse. I feel like I will never have my life back, never be the person I used to be. I look at photos of a girl who was young and vivacious and desirable and had a certain spark about her, and I do not remember her. I cry because I feel too young to have lost her, and because it is unfair that the doctors have never been able to tell me why. I cry because I want answers; even if I only have a year, or three, or five left to hang out on this earth, I want to know what to do to make them the best possible. I cry because feeling helpless and not in control of anything, not even your own body, is terrifying and lonely.

During this time, I found out that my uncle—one of the only people who helps in the care of my family—was diagnosed with metastatic osteosarcoma. It is the same disease that attacked an ex of mine, so I unfortunately know more about it than I should to believe, “It’s not a big deal; it’s most treatable”. The long-term odds of survival are a dice throw, and my uncle is only in his late 50′s. After that, my friend’s cat passed away. I started to see things as signs; signs that validated my theory that the next year of my life needs to be a “bucket list” year.

I had a wonderful Christmas and birthday weekend, surrounded by people who matter to me, and really just having fun in the kind of way that–for just a little while–reminded me of what it felt like to be me ten years ago. I barely remember that naive, life-loving person who would wake up in the morning and feel genuinely excited about the world and the anything and everything that was possible. But, once in a while, there is a glimpse and a memory—and when that happens, I am honestly happy.

I expected New Year’s Eve to be a fabulous night, and planned dinner with friends, followed by a trip to a club that I’d visited every month I was in town over the past year or so. Ironically, the only place to get dinner reservations for 10 people on short notice was a restaurant that is personally memorable to me because I’ve been there on the “break-up dinner” with people in my past. Twice. I even joked about the bad karma that seemed to be associated with that place, but I wasn’t seriously concerned.

Fast forward to 2014, and everyone has toasted with champagne, done shots, and cans of silly string are being passed around. In order to celebrate all the good memories, we sprayed each other with silly string and danced. It wasn’t until 15 minutes later that I went to see why The Guy I Am (Or Was) Currently Dating wouldn’t dance, which isn’t out of the ordinary. He told me in a very cold voice that I had hurt his feelings (by spraying him with silly string), and a fight ensued. Fast forward, and he is leaving the club and my friend, who was sweet enough to not want to leave me, is consoling me while I cried a LOT and getting another friend to come pick us up. Fast forward again, and The Guy I Am (Or Was) Currently Dating has returned and closing out the tab, and my friend is angry that she called for a ride for us and I’m going home with the guy that made me cry on New Year’s Eve. But it is almost physically impossible for me to just let things go and forget them; I need closure on everything. Fast forward again, and I am home, and we are talking about how different we are and how, after 5 years, there is not necessarily any sign of moving forward in the relationship. I tell him he deserves more than to settle for someone who isn’t right for him and doesn’t make him happy. He says I make him happy, but for the second year in a row, we’ve rung in the New Year crying and barely speaking, so I disagree.

Now, we’re talking about the details of ending the relationship and changing Facebook statuses, and it’s almost absurd to think a 5-year connection can be broken because of silly string. But, that’s precisely what happened, and today, I have barely moved out of bed.

2014 was supposed to be a really awesome year, and frankly, it’s not looking that way for me.

The reality is, I call this my “bucket list” year because at the end of 2014, I really still hope to be both alive and healthy. If I manage to accomplish that, I’ll have made it to a “milestone birthday”, one of those where you realise that whether you like it or not, you’re the grown-up now. It sometimes still seems hard for me to wrap my head around that. Inside, I still feel like that little girl in the blue and white butterfly dress who wanted so badly to be sophisticated and impressive, and thought she knew everything about everything at the age of 20.

When you are ill, and you’re not sure why, and you’re not sure about either the quality or quantity of your life, milestones matter. New Year’s Eve celebrations matter, and not spending them with tears and heartbreak matters. I have had a good life. I’ve also had a hard life, an adventurous life, a life that some judge and others secretly envy. I’ve loved often and lost often, and my heart and my body have enough scars for someone twice my age. I have packed a lot of living into what many might consider not that many years. In some ways, it seems like it’s been 70. Some days, when everything inside my body seems out of control and all I can do is cry and beg someone to help me and find the answers, I do not know that I am going to be there with my friends or loved ones to celebrate a brand new year. You only get so many chances, so many clean slates. If something should happen to me, I know that nobody will be quite certain why, or they’ll find they didn’t do the test for the right thing, and it’s simply too late. I know that part of my “bucket list year” is being a responsible adult, and planning for that day when I won’t be here anymore.

I am the type of person for whom no amount of time would be enough time. I try to be as vibrant and enthusiastic about life as I can. I am growing more comfortable with being alone, but not for too long. It isn’t something I like in too great a quantity. I am trying to become the kind of person I want to be, regardless of whether or not other people like her. I am no longer willing to dye myself orange to impress anyone.

I feel sometimes like I am working against a clock, and I do not want to spend the years I have left being afraid. If there is anything that would be the most meaningful thing to me to accomplish in 2014, it’s learning to find whatever strength I have deep down inside that allows me to be less afraid. If I am less afraid, I can actually make a difference in the world. More than anything else, I cry when I imagine that I will be forgotten, that I will have left nothing of value behind, that I will have touched no one for being here.

I want to live the next year of my life with all the health and energy I can come up with, so that if somehow it is my last, I will be filled with love and memories and feelings of accomplishment and having mattered to the world. I need 2014 to be full of life and experience and emotion and vitality and challenging myself to be that person I always thought I could become. I want all the moments to matter, no matter how small. I know that’s a tall order to ask from a new year, but I am going to try, because it means a lot to me.

One thing that has changed about me is that when I was younger, I was much stupider, but far more fearless. I took a lot of risks. They didn’t all pay off and they weren’t all intelligent, but in some ways, it is much better than never trying. I wasn’t about to wait around and let life happen to me; I went after it. It didn’t always lead me to the best places, but it didn’t keep me standing still, fearful of choosing the wrong thing or suffering painful repercussions.

If I could have just a little of that back, I think I’d feel like the old Alayna again. That person is just this flighty little redhead who doesn’t see an adult when she looks in the mirror, because even though there are now tiny lines and crow’s feet, she will never reach 5 feet tall or have that “serious face” that comes with a lot of responsibility. She will never be beautiful, or delicate, or understated, or made of the same stardust that most people seem to be made of, and she will not be the one in any social situation that everyone misses when she is gone. But she is intelligent, and imaginative, and lively, and believes in soulmates and impulsive adventures and being overdressed and sparkly, even if others dislike it. I try to keep in mind that girl is the kind who is crazy and determined enough to be certain she’s going to be here to see 40…even if she doesn’t have any more stability or certainty in her life than the day she showed up in New Orleans with a blue and white butterfly dress and orange streaks on her legs. It never occurred to that girl that she would not be loved by many, that she would not be successful, or that she would not be strong enough to grow old. It didn’t occur to her to be afraid or feel inferior—she needed the harsh judgment and actions of other people to teach her that—-and I envy her for being that unencumbered, in a way only the really young are. I would like just a little bit of that back in my life.